Parents often identify a lack of information about resources as one of the greatest barriers to care giving. For families and many professionals, finding resources is often like navigating a complicated maze with no clear set of directions.
Families and professionals may call the “Southern Regional Center for Children and Youth with Special Health Care Needs” and talk with staff one on one about specific questions or concerns.
My Child’s Health Condition
When looking for information about your child’s medical condition always consult with your child’s treating physician. For resources related to your child’s condition visit some of these websites.
Healthfinder is a website developed by the U.S. Department of Health & Human Resources to provide reliable health information.
HealthyChildren.org is backed by 64,000 pediatricians committed to the attainment of optimal physical, mental and social health and well-being for infants, children, adolescents and young adults.
The National Organization of Rare Disorders (NORD) provides information on specific diagnoses, along with links to specific organizations that are affiliated with those particular diagnoses. Non-subscribers receive a brief report. For a full report, please contact our office at 877-568-5205.
You can also click on the topic below to find detailed information about different medical conditions: