Parents often identify a lack of information about resources as one of the greatest barriers to care giving. For families and many professionals, finding resources is often like navigating a complicated maze with no clear set of directions.

Families and professionals may call the “Southern Regional Center for Children and Youth with Special Health Care Needs” and talk with staff one on one about specific questions or concerns.

My Child’s Health Condition

When looking for information about your child’s medical condition always consult with your child’s treating physician.  For resources related to your child’s condition visit some of these websites.

• The Centers for Disease Control and Prevention (CDC) is the leading federal agency for protecting the health and safety of individuals.
• Children’s Hospital of Wisconsin features detailed health information for children, listed by disease, disorder or organ. You can also find a list of additional online resources under each diagnosis.
• Family Voices of Wisconsin Fact Sheets on Healthcare Topics has easy-to-understand information for families on a variety of health and insurance topics.
• Healthfinder is a website developed by the U.S. Department of Health & Human Resources to provide reliable health information.
• HealthyChildren.org is backed by 64,000 pediatricians committed to the attainment of optimal physical, mental and social health and well-being for infants, children, adolescents and young adults.
• The National Organization of Rare Disorders (NORD) provides information on specific diagnoses, along with links to specific organizations that are affiliated with those particular diagnoses. Non-subscribers receive a brief report. For a full report, please contact our office at 877-568-5205.

You can also click on the topic below to find detailed information about different medical conditions:

Allergies

• American Academy of Pediatrics – Allergies.
• KidsHealth.org – All About Allergies.

Asthma

• American Lung Association – Asthma.
• KidsHealth.org – About Asthma.

Attention Deficit Disorder or ADHD

• Centers for Disease Control and Prevention – ADHD.
• KidsHealth.org – What is ADHD?

Autism Spectrum Disorders

• KidsHealth.org – About Autism.
• Autism Society.
• Autism Speaks.
• Autism Spectrum Disorder–CDC.

Cerebral Palsy

• National Institute of Neurological Disorders and Stroke – What is Cerebral Palsy?
• KidsHealth.org – About Cerebral Palsy.

Childhood Cancers

• National Cancer Institute – Childhood Cancers.

Cystic Fibrosis

• Cystic Fibrosis Foundation – Wisconsin Chapter.
• KidsHealth.org – Cystic Fibrosis.

Developmental Delays

• KidsHealth.org – Developmental Delays.
• Centers for Disease Control and Prevention – Child Development.

Diabetes

• Juvenile Diabetes Research Foundation.
• KidsHealth.org – Type 1 Diabetes.

Down Syndrome

• Centers for Disease Control and Prevention – Facts About Down Syndrome.
• KidsHealth.org – About Down Syndrome.

Epilepsy

• Epilepsy Foundation – Heart of Wisconsin.
• KidsHealth.org – Epilepsy.

Hearing Loss

• American Speech-Language-Hearing Association – Effects of Hearing Loss on Development.
• Centers for Disease Control and Prevention – Hearing Loss in Children.

Heart Disease

• American Heart Association – Congenital Heart Defects.
• Congenital Heart Information Network.

Learning Disability

• American Academy of Pediatrics – Learning Disabilities.

Mental Health Conditions

• American Academy of Pediatrics – Emotional Problems.
• National Institute of Mental Health – Child and Adolescent Mental Health.

Muscular Dystrophy

• Centers for Disease Control and Prevention – Facts About Muscular Dystrophy.
• KidsHealth.org – Muscular Dystrophy.

Obesity

• KidsHealth.org – Overweight and Obesity.
• American Academy of Pediatrics – Obesity.

Speech Delays

• American Speech-Language-Hearing Association – Child Speech and Language.

Spina Bifida

• KidsHealth.org – Spina Bifida.
• Spina Bifida Wisconsin.

Vision Impairment

• Center for Parent Information and Resources – Visual Impairment, Including Blindness.
• KidsHealth.org – What is Visual Impairment?

Or other conditions not listed here?

• Centers for Disease Control and Prevention – National Center on Birth Defects and Developmental Disabilities.
• Centers for Disease Control and Prevention – Developmental Monitoring and Screening.